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Latest News
Oxford Dyspraxia Group
This group is keen to make contacts with parents of children with verbal dyspraxia. For more information contact Julie Lambert direct at
jed-lambert@supanet.com
Next meeting at Oxford Brookes on Wed May 7th, for more information see their latest newsletter
SEN Workshop
Free SEN parents workshop at the JR Childrens Hospital on Tues 13 May 10-12. It covers teaching children how to tie their laces and other things they may struggle with eg. other topics on (DCD) developmental co-ordination delay. To book a place call 01865 231982.
Genetic Research Study - VOLUNTEERS REQUIRED
We have been approached by a research group at Oxford University to help to find families who would be prepared to take part in their latest study.
Studying Genetic Causes of Speech and Language Impairment
Dr Jane Hurst, Dr Samantha JL Knight and Dr Simon Fisher
Oxford Radcliffe Hospitals NHS Trust1 and University of Oxford2
Conditions involving speech and language impairment are very common and yet we still don’t understand very much about them. They are not an illness like measles or ‘flu’, so they can’t be caught by being close to an affected person and they can’t be vaccinated against. However, we do know that sometimes the problem can be genetic, a result of small changes in a person’s chromosomes (chromosomes contain a person’s genetic information and consist of many genes). Indeed, scientists have shown that small gains or losses of chromosomes as well as differences involving just single genes can result in speech and language difficulties. However, such studies have been limited and the vast majority of patients remain without a genetic diagnosis.
As it is important that children with speech and language impairments are offered comprehensive help as early as possible, we wish to determine if we can improve the number of genetic diagnoses by undertaking a new study. This study will use recently developed technology to test the genetic information contained within blood samples obtained from selected patients and their parents (we hope to recruit participants for our study through the help of family support groups and special schools). If we can provide genetic diagnoses earlier for a significant number of participants, then the level of care and future management of patients and their families may be directly affected.
If you are interested in hearing more about this study, and/or potentially taking part in the study group, telephone Gill on 01993 779184 or email
info@oxfordshireafasic.co.uk
for more information, or you can contact Dr Sam Knight direct at
sknight@well.ox.ac.uk
Choice
This is a parent-led campaign to achieve 16+ educational provision
for children with special educational needs in Special Schools in Oxfordshire.
This is a copy of their latest newsletter
Talking Points SEN Advice Sessions (Parent Partnership)
The Parent Partnership Service will provide impartial information and advice.
Join us on a Wednesday morning 10.00-11.30 wherever suits you best.
To find out more: Tel no: 01865 810516
Bicester: Methodist Church, Sheep Street
Nov 8th 2006, Jan 17th, Mar 7th, May 2nd, Jun 20th 2007
Witney: Congregational Church, Welch Way
Nov 1st 2006, Jan 10th, Feb 21st, Apr 18th, Jun 6th 2007
Didcot: Civic Hall, Britwell Road
Nov 15th 2006, Jan 31st, Mar 21st, May 16th, Jun 27th 2007
Banbury: Town Hall, Bridge Street
Nov 22nd 2006, Feb 28th, Apr 25th, Jun 13th 2007
Oxford: The Roundabout Centre, Ormerod School, Waynflete Road, Headington
Nov 29th 2006, Jan 24th, Mar 14th, May 9th, Jul 11th
Carterton: Springboard Family Project (Above Blockbusters), Unit 5 Ramillies House, Alvescot Road
Oct 18th, Dec 6th 2006, Feb 7th, Mar 28th, May 23rd, Jul 4th 2007
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